“Joan Ablon’s remarkable book brings to life fifty-five people with OI who we would otherwise know only from dry medical descriptions, identification of mutations in the genes that contribute to bone, or observations of them working their way through those parts of their lives we share with them. She brings us people in the full bloom of their adult lives, shaped by sometimes rock-hard and isolating experiences. She asks how these experiences shape them- how they integrated these experiences to seek solace, caring environments, romance, jobs, everyday life, and to make a successful adjustment. She has left us with a book filled with wisdom and insight, a reference for years to come, and the impassioned plea to make the world a better place for people with OI and all the rest of us. Not an easy task, but well worth taking on.”

Peter H. Byers, MD
Departments of Pathology and Medicine
University of Washington
Seattle, WA